Wales Rare Diseases Research Network in-person meeting

Mae'r cynnwys hwn ar gael o ffynhonnell externol yn unig yn Saesneg.

The Wales Rare Diseases Research Network (RDRN) is delighted to announce its first in-person meeting.

This all-day meeting will include people with lived experience and advocate organisations, clinicians, researchers, and industry representatives. The event aims to build a community of interest that will support greater access to rare disease research in Wales, combining collaboration, networking and discussion to promote enhanced support to organisations and communities and to deliver on all-Wales grant applications.

The event will open with welcome from Jamie Duckers, Health and Care Research Wales Specialty Lead for Respiratory. You will also hear from Sophie Pearce who became the first person with cystic fibrosis to row the Atlantic and Alan Thomas, Founder of Ataxia and Me and rare disease advocate.

See the full agenda.

Abstract submissions - now closed

Abstracts will be evaluated by the scientific committee on the basis of relevance to the field, originality and adherence to the above guidelines.

Light lunch will be provided and there will be opportunities for networking.

This event is organised by the Wales Rare Diseases Research Network. Contact the team with any queries.