Rare Disease Day 2025 Joint Nation event

Genetic Alliance UK are excited to be hosting a Joint Nation Online Event for Rare Disease Day 2025!

Rare Disease Day is an annual international day aimed at raising awareness and highlighting the needs of people with rare conditions.

The community from will be coming together to recognise the day with health professionals, policymakers, researchers, people affected by rare conditions and support organisations from across all four nations in the UK.

If you have any queries, please email rachel.mceleny@geneticalliance.org.uk.